Most of you will recognize this sweet family and my friend Timmy. Each fall I make sure this beautiful family is on my schedule. Each fall they try so hard to pay me and each fall I refuse. They deserve photos. They need them. You might think that’s a selfless thing for me to do. It’s not really. I get SO much enjoyment and inspiration out of this family, I get a glimpse at the beautiful way they parent, the way they love with all their hearts, the way they embrace each day and moment as the gift that it is. My time with them each fall helps to ground me, remind me of what is important, after a crazy busy holiday season rush. No, it’s not selfless, it’s selfish. I’m honored to know them and get to capture them each year. The boys have grown so much since I first met them. Timmy participated in a trial this year and I have to say, he looks so great. And of course this family is throwing themselves in to finding a cure for Duchenne. They are working so hard for Timmy and all the little boys with Duchenne everywhere. In fact, tomorrow is a big day! Tomorrow Tim with run his 7th Austin Marathon tomorrow for all boys with Duchenne. He’s raising money for his cause and if you are inclined, I’d love it if you would DONATE HERE. Tim was also recently featured in RunTex, you can read that article here.
And a few other things on the CureDuchenne homefront that Tim recently shared with me:
- CureDuchenne ended up winning the Cadillac challenge and now they will be receiving coverage in 4 major Texas markets, promoting a Text for the Cure Campaign. Locally Tim was able to record an announcement about the 3rd annual Champions to CureDuchenne event on April 27th, 2012 at the UT Golf club. The announcement should air the last couple weeks of February on KVUE 24/3. So keep an eye out for the ad promoting the event this month.
- Mack Brown was able to record a PSA again this year for the event and I believe these will be airing through Time Warner this year in March and April. Please also keep an eye out for his PSA and share with your friends as well.
- Recently Tim was selected to participate in a consumer review committee that is reviewing 26 new research projects that could lead to treatments or therapies for Duchenne boys everywhere. It has been exciting and thrilling for him to see the amount of effort researchers are putting toward this disease. The Dept. of Defense is funding $4Million dollars toward the top projects that are selected at the end of the review. While the projects are promising, they could use about $22Million more dollars to fund them all. Therefore, please keep praying for the dollars to appear in order to promote these cutting edge treatment into the trials that will ultimately extend the lives of our boys!
Every single dollar counts. Please consider supporting Tim and CureDuchenne here! I’m sorry I can’t be there tomorrow Tim, we are definitely cheering you on!