I want to live.

Laura and Tim are in the fight of their lives.  Every day.  They are fighting to save their son.  Working, looking, praying for a cure for Duchenne.  Sadly, there are thousands of other families, just like them, who have a son with Duchenne, fighting the same battle.  They are fighting time.  And my heart aches for them.

Duchenne is fatal.

There is no cure.

But there is hope.

I knew from the moment I was asked to photograph this family that they would change me.  I knew I’d learn a lot about Duchenne, something I knew very little about.  I knew I’d come home and hug my children tighter, appreciate the smaller moments a little more.  I knew I’d cry proofing their photos.  More than anything, I hoped I’d be able to give them something they can cherish.  There were several goals in our time together, first to photograph them with Mack & Sally Brown (who are hosting the Dealing for Duchenne fundraiser) for photos to be used on the invitations and at the event that will take place this spring.  I later visited the family in their home to get some photos of their everyday life and casual moments.  All in all, there are over 300 proofs and several slideshows serving several different purposes.  I thought I’d share a few of them here as well….

Slideshow #1:  I Want To Live

and

Slideshow #2 Chance For A Lifetime
[featuring music by Catchpenny Band]

Dealing for Duchenne is a casino event so we had some fun with playing cards.  Let’s just say that MC and I did 52 pickup a few times 😉

Funny story, as you can imagine, there are security measures involved in going out onto the field.  We were out there quite awhile and when it was time to head back inside we discovered we’d been locked in.  So while we waited to be released I stole a few moments away with just Tim and Laura.  I’m so glad I did, these are faves!

While I was capturing the top 2 shots, MC caught the bottom two, which I absolutely love.  Moments for just Mom and Dad are few and far between but this is just about the sweetest “interruption” I’ve ever seen.  High 5 MC!

And a few shots from the session at their home….

I can hear the little boy belly laughs….can you?

I know that wonderful things will happen as a result of this event and I am so very proud to be a small little part of it.

Do you want to help Timmy and thousands of little boys like him?  Find out more:  www.dealingforduchenneaustin.org www.cureduchenne.orgWhat is Duchenne?

By |2010-02-22T19:49:50-05:00February 22nd, 2010|Austin Photographer, Charity Work, Client Work|16 Comments

Dealing For Duchenne | Austin Photographer

Meet Timmy.

cure_duchenne_fundraiser_UT

Timmy is bright.

And curious.

He has a big smile and an even bigger heart.

Timmy is about the sweetest thing I’ve ever met.  He immediately stole my heart with his beautiful eyes and inquisitive nature.

Several years ago, Timmy was diagnosed with Duchenne Muscluar Dystrophy (DMD).  What’s that?  Yeah, I didn’t know either.  So I started researching, and reading, and crying.  As a mother of two boys, how could I have NOT known about DMD?  1 in 3,500 boys has it.  Over 20,000 babies per year are born with it.  And there is no cure. No cure.  How can that be?  The number one genetic killer of little boys.  And there is no cure.  Let that soak in for a minute and it will hit close to home.

Timmy’s parents did what any parent would do, they hit the ground running and began to fight for their son.  Their efforts led them to Mack & Sally Brown at the University of Texas. Timmy and his family touched their hearts in a big way.

mack_brown_duchenne_fundraiser

When Coach Brown won the Bobby Dodd Coach of the Year Award, he donated the award of $10,000  to Cure Duchenne.  But he and Sally didn’t stop there! They will be hosting the First Annual Dealing For Duchenne Casino Night fundraiser here in Austin on May 1, 2010.  They know that every penny, every effort, brings us one step closer to saving little boys like Timmy.  Little boys who are usually wheelchair bound during their childhood, many of whom won’t live to see their high school graduation.  As I was photographing Timmy today, I couldn’t help but wonder why?  And think about how unfair it is.  And I know that those thoughts aren’t a fraction compared to what his family goes through.  My heart truly goes out to them.  I spotted this sign in the hallway today and when I stopped to take a photo of it, I heard Timmy’s dad walk up behind me and whisper “I’m counting on it…..”

University_of_Texas

UT_fundraiser_duchenne_cure

UT_fundraiser_2

UT_FOOTBALL_DUCHENNE_FUNDRAISER

These are just a quick sneak peek of a few of the images we captured today.  A huge thank you to Timmy and his family, you are truly an inspiration!  I can’t wait to see you again.  Thank you to Mack & Sally Brown for your time today and your big hearts and kind spirits.  Julie, for all your hard work and coordination, I know the kids had a blast at the stadium and having full run of the field too!  And MC for assisting me today.  I’ll be sharing many more photos of this beautiful family in the near future!!

You can click here to learn more about DMD.  If your heart calls you to help find a cure for Duchenne, please click here.  Every penny counts!

HOOK EM!

By |2010-01-23T00:46:28-05:00January 23rd, 2010|Client Work|22 Comments

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This Sliding Bar can be switched on or off in theme options, and can take any widget you throw at it or even fill it with your custom HTML Code. Its perfect for grabbing the attention of your viewers. Choose between 1, 2, 3 or 4 columns, set the background color, widget divider color, activate transparency, a top border or fully disable it on desktop and mobile.